From: Hope & Heroes Children's Cancer Fund [js2807@columbia.edu]
Sent: Tuesday, May 19, 2009 8:01 PM
To: js2807@columbia.edu
Subject: Update: Spring 2009 | Brain Tumor Awareness, Create Your Page & More
 

Spring 2009

"Merry month of May, sunny skies of blue, clouds are rolling away and the sun peeps through."
- Harold Arlen

Personal Fundraising Pages & Tribute Pages

It is now easier than ever to invite your family and friends to give in honor or memory of your loved one or to commemorate a special occasion. You can set up your own personalized page to organize your own fundraising event, celebrate a special occasion, or pay an honor or memorial tribute to a family member or friend. Then, you can invite people to support pediatric cancer and Hope & Heroes.

Click Here To Get Started!

Killian Mansfield's Debut CD - "Somewhere Else"

Patient Killian Mansfield's new cd, Somewhere Else drops in late May to benefit Hope & Heroes, with all proceeds designated to the Integrative Therapies Program for Children with Cancer. Features Killian Mansfield on vocals and soprano ukulele, Ralph Legnini on drums and percussion, Gail Ann Dorsey on bass and vocals, and Scott Healy on accordian. The cd is produced by Ralph Legnini and includes guest appearances by Dr. John, Levon Helm, Todd Rundgren, John Sebastian and more! 

Become a fan on Facebook.

Mansfield Family

 

 

 

 

 

 

The Mansfield Family at the Somewhere Else
Listening Party

 Killian has been a true ambassador for the Integrative Therapies Program, helping children (and some doctors) open their minds to the role that nutrition, visualization, acupuncture, yoga, massage, aromatherapy and alternate therapies can play in not only fighting cancer but also living a full life. He was the first pediatric cancer patient to receive acupuncture. He's advocated that these therapies are essential and should be available at all hospitals, free to patients and their families.

National Cancer Survivors Day

The 22nd annual National Cancer Survivors Day is Sunday, June 7, 2009. NCDS is a worldwide celebration of life that is held in hundreds of communities throughout the United States, Canada, and other participating countries. Participants unite in a symbolic event to show the world that life after a cancer diagnosis can be a reality. Join our Center for Survivor Wellness at Morgan Stanley Children's Hospital of NewYork-Presbyterian (3959 Broadway at 165th Street, NYC). The festivities begin at 1:00pm in the Winter Garden.

The Center For Survivor Wellness has a new website - click here to take a look!

Hockeython - Year Two!
Gerry Borsellino, his family, volunteers, friends and fellow hockey players coordinated yet another successful hockeython on Saturday, April 25. Started in 2007, Hockeython is an all-night ice hockey tournament that raises money for Hope & Heroes. Attendees enjoy a very long night of games, food, camaraderie and fun, knowing that they are contributing to a great cause. This year, the event raised $20,000 at the Palisades Mall in West Nyack, NY. For more information and to learn about the next Hockeython, please visit their website.
May is Brain Tumor Awareness Month

Eileen Stark & Patient

 

On May 21, 2008, the United States House of Representatives approved H. Res. 1124, a resolution sponsored by Representative Janice Schakowsky (D-IL), and by this action established May as National Brain Tumor Awareness Month.

Brain tumors are the second most common cancer of childhood (after leukemia) and comprise approximately 25% of all pediatric cancers. Over 3,400 children are diagnosed in the U.S. each year; of that, about 2,600 will be under the age of 15. Brain tumors are the leading cause of solid tumor cancer death in children. The types of brain tumors found in children are different from those in adults. Further complicating treatment is the fact that children's developing brains are more susceptible to damage from toxic treatments. Although more than 70% of children now survive their tumors, they are often left with long-term side-effects, including:

  • Learning problems due to cognitive, neurological, and psychological changes.
  • Vision and/or hearing impairments that can contribute to problems in school.
  • Increased risk for second cancers due to the late-effects of treatment.

 

The treatment of brain tumors is a multidisciplinary practice, involving an extensive team of dedicated specialists. For the future, research is essential and critical to sustained progress and effective treatments. Promising areas of research include molecular genetics of CNS tumors, identification of cellular mutations which can be targets of treatment, and tumor vaccine development. The existing and future projects are designed to lead to new treatments, new diagnostic methods, and strategies to prevent childhood cancer. Our research includes both laboratory-centered basic and translational ventures and clinical (or patient) based investigations in a wide spectrum of projects.

With the leadership gift from the Alfano Family Foundation, an outstanding program in pediatric neuro-oncology has evolved within the Division of Pediatric Oncology with ongoing and remarkable progress. The team, led by James Garvin, MD PhD, includes Manuela Orjuela, MD, Neuro-Oncologist, Eileen Stark, RN, MS, CPNP, Nurse Practitioner, Betty Cruz, Coordinator, and Candida Batista, MSW, Social Worker. With participating physicians in specialties such as molecular epidemiology, pediatric neurosurgery, radiation oncology, pediatric neurology, and neuropathology, the program’s activities, teaching and outreach are extensive.

Brain Tumor Team

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